BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Vivienne C. Finn Foundation - ECPv6.16.5.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:Vivienne C. Finn Foundation X-ORIGINAL-URL:https://vcfinnfoundation.org X-WR-CALDESC:Events for Vivienne C. Finn Foundation REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20270314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20271107T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20261110T113000 DTEND;TZID=America/New_York:20261110T140000 DTSTAMP:20260721T211929Z CREATED:20260709T174135Z LAST-MODIFIED:20260721T211929Z UID:10000005-1794310200-1794319200@vcfinnfoundation.org SUMMARY:Policy to Progress: Cancer Cures for Kids (Luncheon) DESCRIPTION:Policy to Progress: Cancer Cures for Kids (Luncheon) \n \n \n \n \n \n November 10\n\n \n\n @ \n\n\n11:30 am\n\n \n\n\n\n \n - \n\n2:00 pm\n\n\n\n \n \n \n \n \n Inaugural Luncheon \n \n \n \n \n \n \n PURCHASE TICKETS & SPONSORSHIPS\n \n \n \n \n \n \n \n \n \n \n \n \n Empowering Hope \n \n \n \n Our nation is currently navigating an environment of significant federal disturbance. Intense political gridlock\, short-term budget extensions\, and shifting fiscal policies have actively disrupted the pediatric cancer landscape. In recent years\, we have watched critical\, bipartisan healthcare bills get abruptly stripped from larger federal funding packages simply to resolve unrelated political standoffs. This forces advocacy groups to constantly hit the reset button and restart their legislative pushes from scratch.   At the same time\, budgetary instability at the National Cancer Institute—compounded by a rigid 15% cap on indirect cost rates—has caused devastating funding cuts across the country. The real-world casualties of this gridlock are severe: research center contract terminations\, staff reductions\, and vital research networks like the Pediatric Brain Tumor Consortium completely losing their federal funding.   Beyond fiscal instability\, outdated federal regulations have created devastating gaps in care. For decades\, a rigid framework only allowed the FDA to mandate pediatric trials for single drugs\, completely ignoring the advanced combination therapies required to treat aggressive childhood cancers. Compounding this\, bureaucratic red tape surrounding Medicaid and Husky B on CT frequently delays children who must cross state lines to access specialized\, time-sensitive regional care\, while legislative lapses in programs like the Rare Pediatric Disease Priority Review Voucher inject immense market uncertainty into the pharmaceutical pipeline.   When the federal system falters like this\, the financial and emotional burden shifts heavily onto families and private organizations. This systemic instability is precisely why the pediatric cancer community cannot rely on traditional politics. We cannot sit back and wait for a divided Congress to fix itself when children fighting life-threatening diseases are running out of time.   To pierce through this hyper-partisan gridlock\, we need a different kind of movement. We need the perfect combination of masterful structural strategy and the raw\, undeniable power of lived experience.   That is precisely why we desperately need strategic architects to rewrite the rules\, and why we must amplify the authentic\, urgent voices of the youth who live this battle. \n \n \n \n \n \n \n \n \n \n \n \n \n Featured Speakers \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n The Strategic Architect: Nancy Goodman \n \n \n \n Legislator & Founder and Executive Director of Kids v Cancer \n \n \n \n When the standard legislative process broke down\, Nancy Goodman built a completely new vehicle for progress\, driving policy forward with the fierce determination of a mom who knows the stakes firsthand. Driven by the devastating loss of her ten-year-old son\, Jacob\, to brain cancer\, Nancy stepped away from a successful career in international trade law to single-handedly reshape federal legislation. Rather than waiting for Congress to change\, she targeted the underlying economics of the pharmaceutical industry. Nancy is the legal powerhouse behind three landmark federal laws that have permanently altered the pediatric drug development landscape: \n \n \n \n \n \n \n READ MORE \n \n \n \n \n\n \n \n \n \n The Creating Hope Act (2012): Created the Priority Review Voucher program\, unlocking billions in private market incentives and leading to the approval of over 65 new drugs for rare childhood diseases.The RACE for Children Act (2017): Mandated an FDA requirement forcing companies developing adult cancer therapies to conduct pediatric clinical trials if the molecular target matches a childhood cancer.The Mikaela Naylon Give Kids a Chance Act (2026): Expanded the FDA’s authority to mandate that pharmaceutical companies study cutting-edge combinations of novel therapies for kids\, rather than just single drugs.For her profound\, systemic impact on pediatric oncology\, Nancy was recently awarded an Honorary Doctorate from the Baylor College of Medicine. She shows us exactly how passion\, matched with relentless strategy\, can move mountains. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n The Voice of Urgency: Sammy Ulloa \n \n \n \n Division I Athlete\, Osteosarcoma Survivor\, & National Youth Advocate \n \n \n \n Sammy Ulloa ensures that lawmakers can never ignore the real human faces behind the legislation we fight for.  Diagnosed with osteosarcoma at age 19 while competing as a Division I track and field athlete\, Sammy refused to let cancer define her limits. Instead\, she took her champion mindset directly to the halls of Congress.   Sammy represents the vital\, urgent wave of youth leadership that lawmakers simply cannot ignore. Her formidable impact centers on three massive achievements. \n \n \n \n \n \n \n READ MORE \n \n \n \n \n\n \n \n \n \n Capitol Hill Leadership: Running point as a co-leader for “Climb the Hill” teams with Kids v Cancer\, directly lobbying lawmakers and securing the critical support needed to pass the Give Kids a Chance Act.National Youth Executive: Serving as the President of the Make it Better (MIB) Agents Junior Advisory Board\, where she commands peer-support and national awareness programs that lift young “OsteoWarriors” and their siblings out of isolation.Systemic Healthcare Reformer: Elevating the standard of care for Adolescents and Young Adults (AYAs) by publishing clinical perspectives and campaigning heavily for mandatory onco-fertility education and mental health integration in cancer protocols. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Sue Moretti Bodson \n \n \n \n Moderator \n \n \n \n Sue Moretti Bodson is President and Founder of Emboss LLC\, an event and fundraising firm focused on supporting non-profits. Sue’s professional background includes marketing\, public relations\, freelance writing\, and editing expertise. Sue’s volunteer work currently includes serving on the Bruce Museum Board of Trustees since 2019 and as the Co-Chair of the Development Committee. She is a member of the Board of Parks and Recreation for the Town of Greenwich since 2020 and Co-Chair of Parks and Recreation Foundation. She recently launched People Are Saying\, a podcast available on both Spotify and Apple\, to bring attention to the impactful efforts of non-profit organizations. \n \n \n \n \n \n \n READ MORE \n \n \n \n \n\n \n \n \n \n In the past\, Sue has been primarily focused on public education. She has supported and headed local parent-teacher associations and served in multiple capacities on the PTA Council for Greenwich’s Public School System\, including as President. Sue served on the Advisory Board of the Greenwich Alliance for Education after over five years on their Board of Directors\, on the State of Connecticut Parents Teacher Student Association Board of Directors and was the Legislative Liaison for the State of Connecticut. In addition\, she sat on the Greenwich Distinguished Teachers Awards Committee for six years\, with two as Chair.   Sue is a past President of the Junior League of Greenwich. She’s been involved in numerous Junior League of Greenwich capacities for over 20 years\, including over a decade on the Greenwich Pool in Byram Park Project\, which she co-chaired for several years. Other organizations that have benefited from her participation include Greenwich Magazine Editorial Advisory Board and Greenwich Library. A graduate of Gettysburg College\, Sue has been recognized for her community service with several awards\, among them the Junior League of Greenwich’s Phyllis Finn Mentor Award (2022)\, National Executive Service Corps Honoree (2022)\, Greenwich PTA Council’s Lifetime Essence Award for Excellence in Volunteerism (2018)\, YWCA Spirit of Greenwich (2014)\, Moffly Media’s Light a Fire\, Best Friend to Children (2010)\, and Junior League of Greenwich’s Alexandra Compton Award for Community Involvement (2009.) Sue is married to Mike Bodson and has two children\, two step-children\, and two grand-daughters. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n PURCHASE TICKETS & SPONSORSHIPS\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Sponsorship Levels \n \n \n \n \n \n \n \n \n \n Super Hero \n \n \n \n $10\,000 \n \n \n \n \n \n The biggest champions funding to give children a cure and a fighting chance to live. Less than 4% of the National Cancer Institute’s budget is allocated to pediatric cancer research\, although they make up 22% of the US population. \n \n \n \n \n \n \n \n Verbal recognition at the event\n \n \n \n \n Company recognition on the cover of program and full page ad inside event program \n \n \n \n \n Recognition of sponsorship on social media\n \n \n \n \n Premium seating for 10 \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Dream Weaver \n \n \n \n $5\,000 \n \n \n \n \n \n Bringing joy\, hope\, and a dream that children with cancer will live a full life. About 1 in 257 children will receive a cancer diagnosis before the age of 20 years. One in 5 will lose their battle and with it over 70 years of life. \n \n \n \n \n \n \n \n Program recognition with 1/2 page ad inside event program \n \n \n \n \n Recognition of sponsorship on social media\n \n \n \n \n Premium seating for 10\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Bravery Buddy \n \n \n \n $2\,500 \n \n \n \n \n \n Standing beside kids and families as they face their toughest battles and expenses. When you hear the words “your child has cancer\,” the shock and disbelief are compounded by the reality that 25% of families experience a 40% reduction in their annual income due to the diagnosis. \n \n \n \n \n \n \n \n Program recognition with 1/4 page ad inside event program \n \n \n \n \n Recognition of sponsorship on social media\n \n \n \n \n Premium Seating for 5 \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Smile Squad \n \n \n \n $1\,500 \n \n \n \n \n \n Spreading happiness and hope with every gift\, allowing families to make everlasting memories. To date\, only 6 chemotherapy drugs have been developed to treat kids with cancer. The goal is to develop therapies that are more precise and less toxic\, with fewer side effects that will bring better days and more time to make happy memories with loved ones. \n \n \n \n \n \n \n \n Program recognition with 1/4 page ad inside event program \n \n \n \n \n Recognition of sponsorship on social media\n \n \n \n \n Premium Seating for 2 \n \n \n \n \n \n \n \n \n \n \n Patron \n \n \n \n $500 \n \n \n \n Premium seating for 1 \n \n \n \n \n \n Single Ticket \n \n \n \n $350 \n \n \n \n Seating for 1 \n \n \n \n \n \n \n $150 of each seat purchased is non-deductible for tax purposes. \n \n \n \n \n \n \n PURCHASE TICKETS & SPONSORSHIPS\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n In Loving Memory of\nVivienne Cecilia Finn \n \n \n \n August 31\, 2008 - March 10\, 2020 \n \n \n \n \n \n \n \n \n \n Vivienne’s Prayer to the Sacred Heart\nof Jesus \n \n \n \n Perfect Heart of Jesus; give me a heart that has all the beautiful qualities of Yours. A humble heart that rejoices in everyone’s differences; a gentle heart that concentrates on other’s emotions and forgives; a loving heart that thinks before acting and realizes the different situations people are going through. A pure heart that loves God above all things; a heart that only wants to be with You forever; a heart with the help from God could do no wrong. My heart’s goodness shall be shared.   Amen \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Venue \n \n \n \n Greenwich Country Club \n \n \n \n\n19 Doubling Rd\n \n \n Greenwich\,\n\n CT\n\n 06830\n\n United States\n\n\n\n\n + Google Map \n\n\n \n \n \n \n\n\n \n \n\n\n\n \n\n\n\n \n \n \n \n \n \n \n \n \n \n \n \n \n TICKETS & SPONSORSHIPS\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n Walk for Vivienne | ChadTough Defeat DIPG Walk URL:https://vcfinnfoundation.org/event/policy-to-progress-cancer-cures-for-kids/ LOCATION:Greenwich Country Club\, 19 Doubling Rd\, Greenwich\, CT\, 06830\, United States CATEGORIES:Fundraiser ATTACH;FMTTYPE=image/png:https://vcfinnfoundation.org/wp-content/uploads/2026/07/Policy-to-Progress-Cancer-Cures-for-Kids-2026-Luncheon-1.png END:VEVENT END:VCALENDAR