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H.R. 3391 on the House side and S. 1624 on the Senate side
The Gabriella Miller Kids First Act 2.0 will extend the Gabriella Miller Kids First Pediatric Research Program at the National Institutes of Health (NIH). This bill reauthorizes through FY2028 a pediatric disease research initiative within the National Institutes of Health. Additionally, the Department of Health and Human Services must report to Congress about research funded through the initiative.
H.R. 1262 on the House side and S. 932 on the Senate side
The Give Kids a Chance Act amends the RACE for Children Act, a law requiring newly approved cancer drugs to be studied in kids with cancer. The RACE for Children Act only provides for single drug studies. The Give Kids a Chance Act extends this to combinations of new drugs.
H.R. 9938 on the House side and S. 4426 on the Senate side
The Promising Pathway Act 2.0 would grant time-limited provisional approval for drugs intended to treat life-threatening diseases that have 1) demonstrated substantial evidence of safety and 2) robust early evidence that establishes the benefit of the drug is likely to outweigh the risk of side effects. The drug will behave like an FDA approved drug so health insurance coverage for out-of-pocket expenses will be honored.
H.R. 7384 on the House side and S. 4583 on the Senate side
The Creating Hope Reauthorization Act entails the following: Pursuant to the Creating Hope Act 2012, a company that develops a drug for a pediatric rare disease – and receives FDA approval – also receives a voucher. The voucher comes with rights to faster FDA review of any future drug, enabling the voucher holder to receive an FDA “priority review” instead of a “standard review.” Expediting their future drugs to market.
H.R. 7165 on the House side and
S. 3702 on the Senate side
Credit for Caring Act will help families of children with cancer who often are forced to take time off or quit work to care for the child. The act allows an eligible caregiver of an ill child or adult to receive a tax credit up to $5,000 for 30% of the cost of long-term care expenses that exceed $2,000 in a taxable year.
H.R. 4758 on the House side and S. 2372 on the Senate side
The Accelerating Kids Access to Care Act reduces regulatory burdens to allow children with complex medical needs greater access to out-of-state providers who can best meet their needs. Children with cancer often require specialized care from a specific provider or facility that may not be available in their home state, and waiting for approval could worsen their cancer.
Take Action: Make Your Voice Heard
Pediatric cancer research needs champions in Congress—and your voice matters. Contact your U.S. Senators and Representatives and urge them to support critical legislation that give children with cancer a fighting chance.
Every call, email, and letter helps push pediatric cancer research forward. Let them know: our kids can’t wait.